tag:blogger.com,1999:blog-7678894384725181019.post7409950424702614990..comments2013-07-20T07:56:07.288-07:00Comments on Evan's Journey: Evans Journeyhttp://www.blogger.com/profile/01150294041956653328noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7678894384725181019.post-12856164448477021132010-07-23T17:27:51.258-07:002010-07-23T17:27:51.258-07:00Hi guys..my son casey had this same problem with p...Hi guys..my son casey had this same problem with peeing..I thought I'd share what solved our problem..we had two dilations of the penis opening in cincinnati children's. finally we decided to put a small t-shaped cut in the top in surgery and we have not had the problem again...every once and awhile, he blisters the top of the penis and as it heals, the top sort of covers over the opening and we use a steroid cream and stretch the skin back with our hands and it has always opened it up ...he'd begin to pee and his whole penis would blow up like a balloon and the pee would come out slow...and we'd immediately apply the cream three times a day....I believe it's kenalog...Just a thought in case it may help..it's a heartwrenching thing to watch them scream and try to pee....hope it helps..email anytime..johnbeth91@aol.com (mom to casey)caseymommyhttps://www.blogger.com/profile/16009536365889892990noreply@blogger.comtag:blogger.com,1999:blog-7678894384725181019.post-45748921399084705602010-07-23T17:10:02.049-07:002010-07-23T17:10:02.049-07:00My poor baby does not get a break. There has to be...My poor baby does not get a break. There has to be a solution to his boy part, there has to be. You may want to ask other mommies that have boys with EB what advise they can give you. Post something on EB Friends. Will continue to pray for Evan! Please call me if theirs anything I can do for you guys. ANYTHING! Sending you guys my love and prayers. BlancaBlancahttps://www.blogger.com/profile/13255549429305771783noreply@blogger.com