Today EVAN TURNS 2.

HAPPY BIRTHDAY EVAN.

I can't believe Evan is 2. He has had a rough two years. But he is strong and he is a fighter. We are going to fine a cure for this illness. We are having him a party today at pizza hut. He loves pizza. So we are going to have some Friends and family there.

He is doing pretty good right now. His teeth are still hurting him. We are going to Richmond Wednesday to meet a dentist. Cincinnati wouldn't take his insurance so they helped me fine a dentist in VA. So when we go Wednesday I hope they can fix his teeth soon.

He is eating good right now. So i hope he keeps on eating like he is.

He still has sores that just wont heal. His hips are so bad and his diaper are is so bad. His toes are still not healing.

It is getting cooler outside now. So we can go out and play. But we still cant stay out long because of the bugs are so bad. So we just cant win for nothing. We went to the park the other day and he had so much fun. But all the little kids was just looking at him. They wouldn't stop looking. How do you tell little kids about Evan. They don't understand. But we just kept on playing. Evan was trying to play with some of them but they wouldn't play with him. That was so sad. I hate to see when he gets older what people will say or do. But i know people just don't no about this terrible illness. Evan's face is the worsted on him and i wish it wasn't. But it will be okay.

It has been a good week for Evan. I got sick Wednesday vomiting. So Evan went to his grandmas so he wouldn't get it. I'm so glade he didn't get it. I thought i was going to die.

Anyway Saturday we had a little party for Evan for some of my family, because they are going to the beach and wont be hear for his birthday. We had his party at the park. Evan had so much fun he open his presents and had a good time. He favorite toy was his truck. He has every truck you can think of. Then we went over to the ducks he just loved them. Then we went to ride the train. At first he didn't like the train. Then he saw the other little kids there and he did okay. So we got on the train and he loved it. I wish i had some pictures.

Evan finally started to eat, I'm so glade. He still not eating like he should. His teeth are really giving him a hard time. We go to Cincinnati on the 14 to get his 8 teeth fixed. They wont to cap them but i told them no, because it's going to cost me 2thousands dollars. If they take them out it's not going to cost 2thousand dollars. I have to pay for this out of my pocket. I don't understand. So when he gets his teeth fix i hope he will eat.

Evan has had a rough week again. Evan hasn't been feeling good again. I took him to the doctor yesterday to check his iron level is was 7.2. So went to the hospital to day and they gave him a blood transfusion he did so good. I was so happy, he stayed in the bed all day, and he played with his toys. He watch TV, he was the best little boy. Now he looks so much better. I hope this makes him feel better, and some of his wounds heal.
Evan still not eating I'm so worried about it, I'm going to talk to them about the G Tub. I'm afraid he isn't getting what he needs.
He is still having problems with his peeing. He is having a hard time again. I did open him up to day, but i don't think it's going to work. he

Evan has had a rough weekend. He got up Friday morning and he couldn't open his eye. I new what was wrong he had corneal abrasion. So the weekend came and he got worse. He couldn't open it at all so all weekend long i had to hold him. It was bad. I was going to go crazy because he was just cry and cry and say mommy mommy. There was nothing i could do for him. So Monday we got into the eye doctor and he had the corneal abrasion so he gave us some drops for it. He said if no better by Friday bring him back. To day is Wednesday night and he has his eye open all the way and he is feeling better. I'm so happy.
His peeing problem is doing okay for now. I'm not saying much about it because every time i do he has problems.
His breathing is still the same. When he gets hot he has problems with his breathing.
I took him to the doctor to Monday and his toes are infected. So he is on antibiotic again. Now he is on antibiotic he is going to have the yest problems.
Evan still not eating like he should but let me tell you he is 27 pounds. I can't believe it.
Evan will be two years old this time next month. Where did the time go. I just cant believe it he has came along ways. He is such a fighter. What to do for his birthday. He don't need no toys and he don't need nothing. So i think i'm going to tell everyone to give money and the money is going to go to the Debra to help fine research for EB. So they can fine a cure for EB.

Evan tractor that his granddaddy got him.