Monday, April 2, 2012



Evan riding his sister 4wheeler. I cant believe he is driving it.

Saturday, March 24, 2012

Evan had to get blood transfusion done on Thursday. They checked it on Monday. His HGB was was 6.9. His iron level was 24. I new it was low he didn't have no energy and he was really pale. I wish we could get it to stay up. He did good with it. It took 4 hours he watch TV and we played trucks. He is such a good boy.




Evan at school wear his green on St. Patrick day.


Saturday, March 17, 2012

The weather has been so nice. We have been play outside everyday, we have been going to the park. He loves it. I have him out now because when summer gets hear he wont be going out. Evan is doing good. My girls are doing good to.


Evan goes Monday and he has to get new Catheter. He tells me that he don't wont his catheter no more. He said his tube hurts him so bad, he said tell the doctors that it hurts him and he don't wont it back in. I wish he didn't have the catheter. He just break my heart.





We got a present the other day. I don't no who got it for us, but me and Evan love it. Tri county came knocking on my door and they had rocking chair. I said that's not for us, he said yes it is. I said no i didn't get no chair. He said there a note hear for you. And i read the note and it said hear is a rocking chair to rock your baby. It didn't have no name. So who ever you are i want to say THANK YOU SO MUCH. We love it.

Friday, March 2, 2012

Tuesday, February 21, 2012













Sunday we got 9inch of snow and the kids had so much. Evan loved it, this was his first time playing in the snow and he did everything his sisters did. It was about 6:00 and they was wanting to go back out. I said just for few minutes because it will be dark. So they had so much fun they didn't wont to come in. That night i new Evan would sleep good. Evan feel asleep on the couch around 8:00 so i put him to bed and then i stayed up until 12:00. So i went to bed and just fell asleep Evan woke me up vomiting. I said oh no. So i got the bed clean up and got him back to sleep and he did it again. So finally around 3:00 we got to sleep. When he got up he was fine. He was wanting to go back outside and play in the snow. So i told him no maybe later. So around 1:00 we went back out, he played for little bit, but you could tell he wasn't up to it. He said mommy i wont to go in. We went in he got his cup and went to sleep and sleep for 3 hours. He still wasn't feeling that good.


We didn't make to his appointment either because of the weather and he was sick. We go back to get his catheter changed out on Monday. He catheter is really hurting him now.

Sunday, February 19, 2012







I took the kids to the trains station. Evan loves going there. The weather was so nice. We seen so many trains. The kids rode the train couple of times.









Evan has been doing good. We go back to UVA tomorrow, if we don't get all of this snow we are suppose to get. Evan will get his new catheter and his blood check again. His HMG is getting low so he might need blood transfusion.




Evan is using the potty now. So no more diapers for him. He is doing a good job using the potty. His diaper area is looking some what better.

Tuesday, February 14, 2012

Happy Valentine's day.


Evan had a Valentine's times party at school today. I was so glade i got to go and see all the other kids. Evan was so happy that his mommy was at school with him today.