Evan had to go to UVA today to get his SP Catheter changed out. He did good until we was on the way home. He started to get sick and his stomach was hurting him really bad. When we got home he got sick. He finally is asleep now but he isn't drinking nothing. So i called the doctor they going to give him something for his belly, so he will be able to drink. I hate when my baby is sick. His catheter is irritating his bladder so he is having some blood in his pee. I hope it stops soon.

I took Evan to UVA last week to get his iron check it was still low. So he got iron another infusion done. His blood work looked a lot better then it has before. So that is good news. Its still not as good as it should be.

Evan had his graduation for nursery school. I can't believe it is all over now. He did so good and he has learn so much from being there. He loves his teachers, they was so good to  him to. I will put him there next year to. My little man is getting so big. I want to say thanks to all of his teachers for being so good to him and taking good care of him. I no he was lot of work sometimes but you all did great job.

The weather hear this weekend is to hot. Evan can't go outside and he loves it out there. I hope it cools down so he can play outside.

 Evan getting his iron infusion

 At the Lake

 He loves the sand with his monster trucks.

Evan had to go back to UVA on Tuesday. He had to get his new Catheter, and get his iron infusion. We go back in 3 weeks, and he has to get his iron check and get another catheter.

Evan is doing pretty good. His breathing is still the same. The weather is getting hot so his breathing gets worse when he is outside. He loves it out side he loves to play with the kids outside. His skin looks really good. I'm trying everything to get his face to heal. But it want.

We went to Cincinnati to see the eye doctor. They said that they are going to try the skin grafts on his eye lids. They said it may not work. But we are going to pray that it works. Evan has lost most of his eye lids they said that we have to try this. We are going back in June for the surgery on his eye lids. We will also see the ENT and the Urology to.

Evan has had lot of problems going on now. But i no he is fighter and he is going to fight this. I just no i hate this illness. The illness is getting to my little man. His eyes, his airway and the urology problem. His skin looks good but he has a lot of other problems. So keep Evan in our prayers.

 Evan at Humpback looking at the water. He loves throwing rock in the water.

 Evan and Chy at the zoo in Cincinnati.

 Looking at the animals

 Evan's favorite animal. 

 Evan getting ready for surgery he wasn't happy at all.

 Evan after surgery. When he got out of ICU.

Evan feel and gashed his head open, on our way home.

He loves to play in the dirt with his monster trucks.

Evan feel hit his head on the step. He gashed it open. Took him to the ER he needed stitches but we didn't put them in. The doctor was afraid it would tear his skin and so was i. I didn't no how we was going to hold him down if they stitched his head. So we decided to wrap it up and i will just keep it cleaned and keep it wrapped up. Evan has had it bad the last few weeks. I hope it gets better for him.

We are leaving tomorrow to go back to Cinicnnati. He has to see another eye doctor. They are worried about his eyes he has lost a lot of skin on his eye lids. They said if the eye lids dont heal he will lose the rest of his eye lid. If that happens he will go blind. I dont want that.