We got to go outside today and play it was so nice out there. I hope it stays like this.

Evan is doing okay. He is having some problems with his teeth they are decayed. So we will be going to Cincinnati so they can fix his teeth.

He still not eating but i guess he don't wont to eat. He is still drinking. So that's good. His toes are really bad they are hurting him so bad. I just don't know what to do with them. They have a bad smell to them to.

Hannah did good with her scoop. They didn't fine nothing so that's good. They are still wait for some of the stuff to come back, but he said everything should be fine. So i was glad about that.

He loves his tractor that his granddaddy got him.


Evan is fixing the step.

If it don't cool down we are going to go crazy. Evan wont's to go outside and play and he cant. He will look outside and watch his sister play and get so mad because he cant go out there. We did get to go outside yesterday even. It cool down some. Evan had so much fun, he didn't no what to do he was run everywhere. It was so good to see him like that. Evan was running after his sister and he fell and the skin on his knee was gone. So we had to go back inside and fix it. His legs was looking so good. Hannah came in to check on her brother she said I'm so sorry Evan next time we will walk. That was so sweet.
I wont to take him to the zoo. So i hope it cools down. I wont fall to get hear so bad. So Evan can get out and have some fun.

Thanks Casey, I'm going to email you. We was up in Cincinnati in July Dr. Azizkhan open him up and he said he would hope this would help. It is all scare tissue. We do use and Steroid cream on his penis. I talk to Dr. Azizkhan on Friday and he said that he wont to but a catheter in him for 3 weeks then take it out and see how he does.

Evan is doing good right now. His skin is looking good. He is feeling good. He can pee right now. He still not eating but he will eat when he gets hungry.

Thanks Blamca. I'm going to post it on the EB page i just haven't done it yet. I have talk to people on face book about his peeing. They have told me what to do, but we have done all of that. The doctors just cant believe he is closing up like he is either.

Hannah goes in Friday for and upper Endoscopy. So i hope everything turns out okay.

I had to take Evan back to the Urology today. He was up all night because he couldn't pee. So the urology open him back up. I'm so tired of seeing Evan in all of this pain when he cant pee. There has to be something they can do. I'm waiting for the doctors in Cincinnati to call me to see what they say.
I took him to the doctor last week he had and ear infection and his teeth are looking really bad. So he goes to the dentist next week. The doctor thinks they are decayed i hope not. I no the two in the front are just about gone. So my little guy isn't going to have no teeth.
His breathing is still the same. Sometimes when he talks nothing is coming out. So that is a little scary. So i just hope he don't need no trache. I just don't wont that for him.
He is doing good with his weight. He is up to 27 pounds, I just don't no how he don't eat nothing. I guess the milk is doing it.
I just wish it would cool down some so we can go outside and have so much fun. I try to put him in the pool he don't like it no more. I don't no why. He don't like a bath no more either.

Hannah goes in next Friday for an Upper Endoscopy. So I hope everything goes good for that. I hope they can find out why she is having so many stomach pains.

Evan and Gabe playing ball.

Evan playing with his truck.