Evan has been doing good. He has some ups and down. Put doing OK. We have nurse now that comes in and helps me. Its been nice. I cant get some stuff done around the house and go to the store.

 

Evan and the girls are ready for Easter.



 

 

Pleas pray for Easton. He has EB and isn't doing so good.

I got to meet him and his family in Cincinnati.

 

Evan has been doing good. His Velcro ties are tearing his neck up. His neck has never been this bad.  He is back in school now, and he loves it. The kids missed him so much.

 

Evan was Thing One at school yesterday.

 



https://www.facebook.com/groups/191661084289854/


Hear is Evan's facebook page also.

I had to take Evan to the doctor today. He was up last night with really bad cough, and fever. He has sinus infection or upper respiratory infection. He can never get break.

We will be going back to Cincinnati soon for skin grafts and scoop of his penis. We are hopping to take His SP Catheter out. Evan wants his catheter out so bad. So i pray that he can pee out of his penis.

Evan is doing okay with his trach. He still don't like it. His neck is doing little better. Evan is breathing so much better, he can play and not get out of breath.

I want to say thanks to everyone for the gifts and card Evan has gotten. He has loved everything. We have got stuff from so many people and in people that don no us from different states. Its so nice to see that there is so many nice people out there.

We had to go back to Cincinnati for EB Clinic. Evan had to have ultrasound on his bladder and kidneys. We finally got some good news. They said Evan was doing great. They might take his Catheter out when he has skin grafts. Me and Evan was so happy to hear that.

We will go back in couple months so Evan can get his skin grafts, and then they will look in his penis and might take the catheter out. I hope and pray that it works.The ENT doctor will also look in Evans airway to check out things.

While we was in Cincinnati this time i told Evan we would have some fun. So we went to the Aquarium. He loved it he had the best time. When we walked in there he said what about my trach, i said its fine. He said will the fish and the sharks like it. I said yes they will love it. Poor thing worries so much about his trach.

 Evan at the pool.

 



 Evan and Daisy eating pizza.

 

 When we got home they had the monster Truck Show.

 

Evans favorite truck.