Tuesday, March 31, 2009

Big sister

This is Evan's oldest sister Chyanne, she's 7. She has a hard job of being the oldest and that means she can do more to help Mommy!

Sisterly Love

Here he is with his sister Hannah. She's 3 and does a good job helping take care of him and entertain him. He wants to roll over and play and luckily hasn't got any new blisters doing it!
Evan & his mommy back around Christmas. This was a rough few months because his blisters seemed to get worse instead of better. His mommy has the hard job of taking care of him on a daily basis and babies with EB can have ALOT of taking care of to be done!
Evan has good days and bad days..this was a picture taken on one of his bad days. It was in November of 08 when he was about 2 months old. Luckily he's seemed to get better as he grows.


This blog is about Evan and his journey every day with the rare genetic skin disease called Epidermolysis Bullosa. He was diagnosed shortly after birth and this blog is our way of documenting everything him and his family goes through. He has two older sisters, Chyanne and Hannah and a Mommy that takes very good care of him.