Thursday, August 25, 2011

Evan is having hard time with his catheter again. I had to take him to UVA to see the Urology they tryed to get his catheter open and it wouldn't. So we had to get him in the OR. He had to get a new catheter. So they told us that they couldn't get him into the OR until 4:45 i said OMG. So we went to the mall to kill sometime. He got tired of that so we went back to the hospital. The weather wasn't to hot so we set outside for a little while. I heard the loud noise then everything started to vibrate didn't no what it was. Some people was coming out of the building and said it was Earthquake. So come to fine out it was Earthquake.
Then the time finally came and they call us to come back to get Evan ready to go to the OR the time was 5:00. Did i tell you i was really mad, oh yes i was hot. Evan was hungry he was cry for his cup. I told them they need to get moving. So finally at 6:30 we went back to the OR. Evan got his new catheter. He did good.
We finally got to come home we didn't get home until 10:00 that night. Evan was so tired. There is something still wrong. He is still hurting. So we go back to Cincinnati i hope they can do something. I hate to see him hurting so bad.

Wednesday, August 17, 2011

West Va. Fair.

Evan before surgery.

Evan had to go to UVA and get his new catheter. Evan wasn't happy at all when we got there. The gave him some medicine to clam him down. And it worked. Then they came and we had to go back to the OR. So we went back there i held him until he went out. So i went to the waiting room to wait for him to get done. The doctor came out and talk to me, he said that Evans catheter was stuck they had hard time getting it out. He said that Evan will have some blood in his bag when i go back there. I said okay.

So finally they called me to come back there now, they said hear up because he is mad and wont's his mommy. I heard him cry so i went running to get him. They hand me him and we rock to see if it would claim him down and it didn't. Then he pulled out his IV. They said we need to get him clam down he is going to tear his skin up. I said yes he is. So finally i got his cup but his pedisure in there and he was started to clam down. I was so glad, he scared me. we stayed there for a little while longer, to make sure he was going to be okay.

We got home and he was so happy he played with his sister for awhile. Then he got tired so he went to sleep. When he woke up he was okay. When it was bed time he was in a lot of pain. I don't no what was going on with him. He said my tube hurts. So he cry out and wouldn't stop cry. Finally he went to sleep.

Thursday, August 11, 2011

Wednesday, August 10, 2011

Evan has been doing pretty good. He hasn't been sleeping that good. But he keeps on grabbing his penis and telling me it hurts. So i new he was getting another UTI. His pee started to get dark so i took him to the doctor so they can check it and he has nother UTI. I just don't understand why he keeps on getting one. So that is making him feel little bad, but he is doing OK.

He hasn't been able to play outside because it has been to hot. Today was little cooler so i took him and the girls to the fair. My cousin was going so we met us up there. Evan had so much fun. He loves the rides. We had alot of people looking at him and talking. But i just went on and didn't look or say nothing. I know my little man looks different but he is the cutest thing ever.

We are getting all of his doctor appointments together for next month in Cincinnati. He is going to see all kinds of doctors, we have 3 days of doctors. I wont Evans eyes to heal up some they are looking so bad. And at night time he cant close the left one no more. I'm hoping they can do something.

Saturday, August 6, 2011

Evan looking at his book while i do his bandages.