Sunday, September 20, 2009

Mommy was wrapping me and i went to sleep.
Evan is feeling some better, his penis is looking okay. I'm going to call the doctor b/c i wont to make sure that it's okay. He goes back to the doctor Friday for a checkup. His breathing has been bad, he has been breathing really hard so i don't know why that is. So I'm going to call and see what they wont me to do for that. I hope that goes away. I don't wont that to start back up.

Wednesday, September 16, 2009

Evan needs everyone to pray for him, he is a lot of pain. He was having a lot of trouble going to the bathroom again. His penis was closing again. Last night he was cry an shaking because he was in so much pain, I was crying with him. There was nothing I could do, i try to hold him but that didn't work. When he is in pain an there isn't nothing you can do it was killing me.
I had to take him to the urology again and he said we have to do something. I said yes we do,We where just there a month ago. So he said that he wont's to do the procedure. So we did the surgical procedure i hope it works. I hope he don't get any new blisters on him. He is in some pain but I'm giving him med. I hope I did the right thing for him.

Saturday, September 12, 2009

Evan loves his balloons

He didnt like everyone sing to himHe loved his cake

Friday, September 11, 2009

I did think he would be hear for his first birthday put he is hear. I pray everyday that he will be okay, and they will fine a cure for his EB. We are going to have a big party for him.

Wednesday, September 9, 2009

Evan loved the grass he wonts to play with his sisters, he was all over the yard going after his sisters.
We are at grannys for a cook out
This is Chyanne, thats my big sister she is in the Highlighters This is my little sister Hannah we are watching Chyanne

Evan is doing okay he has a nasty cough but i hope that goes away. We had a good weekend he was in a good mood all weekend long. The weather has been nice it hasn't been that hot. We went to the parade Monday Evan loved it. He was so happy and smiling i loved it, I love to see him like that. We had a lot of people looking at him, but we just kept on going and having fun. Evan is eating good he don't like baby food now so he eats what mommy eats now, but that is okay. I'm glad that he is eating. He will be year old Friday I can't believe that. Where did this year go. I didn't think he would make it this far but he is a fighter and he is still hear with me. He is going to fight this disease and we are going to find a cure. So he can be a boy an play football and run outside with out any thing on.

Friday, September 4, 2009

I had to go back to the doctor again to day. Hannah has been sick she has a cold and an ear infection, Evan has a cold to. SO I hope they get better soon. Evan is doing okay his skin is looking good. He is trying to walk it is so funny. He is into everything. I took him outside today and put him in the grass he loved it. He got mad when i picked him up to take him inside. I hope it stays cool now so i can take him outside he enjoys it.
We are going to have a cookout this weekend so I hope it don't get to hot so Evan can be with all his family and enjoy his self outside again.

Tuesday, September 1, 2009

I took Evan to the doctor, he has infection. They but him on Cephalexin again he was just on that 2months ago. SO I don't no why he keeps on getting a infection I do everything I'm suppose to. Now he wont eat nothing he will take his bottle, but I can't get him to eat no food. Yesterday he had only 3 bottle all day. I'm having hard time keeping him wrap he gets mad and try to take everything off. So I hate to put paints on him because its to hot.
We had a bake sale this weekend and it turned out good. I just wont to think everyone for everything they did to help.