Wednesday, December 28, 2011

My 3 baby's on Christmas eve.

We had good Christmas. Christmas day we took it easy we stayed home most of the day and the kids played with there new toys. He got train table and he loves it.

Thursday, December 22, 2011

Santa came to our house today.

Wednesday, December 14, 2011

Christmas 2011

Thursday, December 8, 2011

Evan had his surgery he did good. The urology doctor is going to change out Evan's catheter every 3 weeks now. Because he just cant make it to the 4 week. The ENT doctor check his vocal cords and everything is still the same looks okay. His noise got clean up they silver nitrate it and it looks really good. I just wish it would heal. They did a biopsy on his tongue to see what it was. we will no something in couple days. I just hope its nothing.
We went and say the eye doctor to and his right eye lid is missing alot of skin. He is worried about his eye. I have to keep his eye good and moist all the time. IF not he said he could lose his eye sight and we don't wont that. He said that we will have to do some skin grafts if no better soon. so i wont that now why wait. So any way we go back there in 6 months and if no better he will do some skin grafts on his eye lids. It will help for awhile. The only thing that will help it heal all the way is a cure for EB.
We go back to Cincinnati to the EB doctors in March. When we go up there i hope they will do it while we are up there. But i no they wont. But I'm going to see what i can do about that. I cant wait to go back up there and see all the doctors. I just wont to thank everyone for all the prayers for my son.

Thursday, December 1, 2011

Evan loves the train under the tree.

We had good Thanksgiving with the family. We went to my grandma's house. The weather was nice so the kids played outside. Evan was feeling good so that was good.

While the kids was home we decorate the Christmas tree. They did it all, and they did a good job. I didn't put everything out this year like i did last year.

Evan has been doing pretty good, he has had cold for awhile and bad cough. So i think I'm going to keep him out of school until the first of the year. To see if that helps. I hate to do it, but i don't wont him to stay sick either.

Evan is having surgery again next Tuesday. He is getting new catheter and then the ENT doctor is going to clean his noise and look in his airway. Evan also has something growing on his tongue so they are going to look at it to. I hope its nothing and everything will turn out okay. So if you read this please pray for good news.