Monday, May 31, 2010

It has been crazy around hear. Friday morning i had to take Evan to the Urology, he got up and his diaper was dry, so i new there was something wrong. Abut two hours later he started to scream and cry and wouldn't stop, so i new there was something wrong. So we went to the Urology. He said that it was almost closed up. SO we had to get the nurse in there and she had to help he hold him. The had to put the catheter in and he couldn't get it in so he got something else and got. Then put the catheter back in to get some of the pee out and to see if he had any infection. He didn't have no infection. SO that was good.His boy part is still hurting him.

Evan has been itching alot. SO they called some new med. for him so i hope this helps him. His face is still looking bad. He touches it now and the skin tears off. I wish i new what to do for him. i keep him inside where its cool.

We are going to Cincinnati in 3 weeks. We are going to see the dentist when we are up there. His teeth are still hurting him.

Sunday, May 23, 2010

Evan is doing okay he is getting alot of new blisters. His face is looking bad. I don't think he can go outside that much now. When he goes out there he turn red and his breathing gets really bad. SO I'm going to call and talk to the doctor about that. I have had him in this weekend and his breathing is a little better, but he still breathing hard. He is have problems again with his little boy part. He is having a hard time peeing.

I wish he would wake up one morning and be EB free. That would be so nice.

His teeth are still hurting him. They are so decayed. So I'm waiting for the doctors in Cincinnati to call me so we can go up there and get his teeth fixed. I hope soon.

He is still a little fighter and he keeps on going. That's what i love about him. He is a fighter.

Wednesday, May 19, 2010

Hannah graduation pictures.

My two girls.

My lil man

My lil man being a monkey

Tuesday, May 11, 2010

Today Evan is 20 months old. I just can't believe it. I didn't think he would be hear, but he is and he is the happiest boy ever.

Evan is doing good. he goes tomorrow to get his blood check to see how is levels are. I hope good. He hasn't been eating today. I guess he has blister in his mouth. He has been so happy and so good this week. That i just love it, he is such a boy. His face is looking bad again. His teeth are really hurting him to. I think I'm going to have to call the dentist again and tell them that they are going to have to do something for him. I think that's why he wont eat.
There's nothing really else to write, he is just doing good and I'm happy that he is doing so good. So think everyone for praying for him. God is good.

Tuesday, May 4, 2010

Evan is having some problems with the rest of his teeth. The one's that came in was looking pretty good and now they are breaking off and they are hurting him now. So i called the dentist in Roanoke and they are going to see him today. I don't think they will do anything. But someone will do something soon. I don't like him in all this pain.
The heat is really getting to him again. So i had to turn on the AC. He is getting more blisters. His face looks bad now. I had to wrap his arm today that is the first time i had to do that for a long time and let me tell you he don't like it at all. He has done took it off twice now. So i don't wont I'm going to do.

Hannah is still have problems with her stomach. We are trying to get her cleaned out but it's been hard. They gave some suppository's and she don't like it at all. But it working now. But it really making her stomach hurt.