Tuesday, June 30, 2009

I have started to crawl now. Mommy said its time to get some gates up now or i will be trying to get up the steps. I can set my own self up now to .
Evans eye is doing some what better, but it still is hurting him. He does open it but the light hurts its eye. He did lose his toe nail last night that almost made me cry but it dose look better, his finger nails are almost off to. He hasn't had any new blister his skin is looking good. He is making more sounds I'm so happy. He is having his good days and bad. Last week was the bad week. So i hope this week is better for him. He needs it he has been in so much pain. So when you read this please pray for him he needs it.

Thursday, June 25, 2009

I called the doctor about Evan again his eye is getting bad again. I'm so worried about it. His buttock an his penis is getting bad again to . I feel so bad b/c I can't do nothing for him. Today he had a bad day he has cry a lot. He has had only 3 bottles to day he wont eat no baby food. He is getting blister's in his mouth. He is trying to crawl it is so cute.

Tuesday, June 23, 2009

Mommy put me in the pool I loved it.
I'm feeling better now my eye is getting better I can see. Mommy took me back to the doctor today the doctor said that his eyes look better.

Saturday, June 20, 2009

Mommy took me back to the doctor again I have the pink eye. I couldn't see know one my eye was close up. I can open it up now. I'm getting new blister my skin is looking bad right now, so mommy has to wrap my legs an my torso. I have a big spot on my face now. I'm just having a bad week. All I wont is my mommy.

Wednesday, June 17, 2009

Evan had to go back to the doctor yesterday. His penis was getting bad again an he couldn't go to the bathroom that good. So his doctor send us to another doctor. He looked at Evan penis said that it needs to be fix, so he numbed it up an open it so he could go to the bathroom, Evan did do good he cry for min an that was it. It hurt me more then it hurt him. He is so strong. All EB kids are so strong they go threw so much. We have to go back next week for a check up i hope it don't close back.
My hands are getting better, they don't hurt that much now. Mommy wraps my hands at night now. so during the day i can have them to play with.

Wednesday, June 10, 2009

Evan went back to the doctor today, so he could check him out. Doctor said that everything is looking better. He had to help me clean around his belly button that was looking bad. So he got that clean up and it looks good now. He is off his cephalexin now so I hope he don't get no more infection for awhile or never. His finger nail and the tips of his finger are getting bad still. I don't know what to do for him, when he hits something hard he crys. His noise is bad. Every time he touch it, it bleeds. He is getting new blisters now, he was doing so good with out getting blister. The physical therapy is coming over tomorrow.

Monday, June 8, 2009


Me kids an some of my friends went camping Saturday night. My kids had so much fun. Evan did do good he loved it. That night he sleep all night, he got up at 6:ooam to eat. He loved to watch the fire and he was watching the girl roast marshmallows. The weather was good it wasn't to hot for Evan, I was so glad.