Friday, December 31, 2010



I hope everyone had a good Christmas. I no we did. Evan was feeling good. He got up Christmas morning around 6:00, and he went into the living room and seen all the present. He said i wont to open. I told him he had to wait for Chy and Hannah to get up. He went to the steps and yelled at the girls to get up. It was so funny. So they got up and, and they ran into the living room to start opening presents. This was the best Christmas ever. The kids got so much stuff they didn't no what to play with first. I wont to tell everyone thanks so much for everything they did for me and my kids for Christmas.

The next day Evan wasn't feeling good he had bad cough and he just looked bad. So i new he was getting sick. So that was so upsetting. He cant go a week now or he is sick. it sucks. So i took him to the doctor and he had bad cold. Then his eyes starting to act up. So now he has corneal abrasion. I hate them things they aren't no fun.

Thursday, December 23, 2010


We are so ready for Christmas this year is going to be so much fun with my kids, Evan is going to love Christmas this year. I hope everyone has a good Christmas.

Evan is doing good, he is eat like he has never ate before I love it. He is still having problems with his peeing. They thinks its bladder spasms.

Thursday, December 16, 2010

It has been crazy hear Evan has been sick and everything has happen. On December 8 I had to take Evan to UVA hospital, he couldn't pee. Evan has catheter and he still couldn't pee so i new there was something wrong. It was the catheter had skin in there blocking him to pee. So the next day Evan had surgery to fix the problem, Well thing didn't go the way they was suppose to they had to put a new one in. So they had to cute him again and to it all over again. I felt so bad for Evan. After surgery he wasn't acting right at all he got sick had small fever. So the next day he was okay but not Evan. We got to come home. That night Evan got sick he couldn't stop vomiting. So Saturday he was still sick and he was vomiting and had a fever. Saturday night he was felling better i thought. Saturday after he went to bed he got up he had fever and he started to vomit again. So Sunday i called my mom and told her i was taking him to the ER. I had to get my girls ready for church and then me and Evan went to the ER. They took him to another hospital in Roanoke. We got to Roanoke, they had to check his weight and he had lost 2 pounds, i thought i was going to die. I told them that he had lost some weight. So they check his stools and his blood work. His blood work came back and his blood wasn't good at all. So they called Cincinnati and talk to one of Evans doctor. So they could get better understand with his EB. So they started and IV, and he need to get some nutrition to. They gave him some nutrition. They rest of his test finally came back and Evan had the Rota virus. I said what is that so they told me. So we stay at the hospital for a couple of days. Evan start to feel better he stop the vomiting and no more fever. so on December 14 we got to go home and Evan is doing okay. Evan still not eat, we are trying to keep fluids in him. So tomorrow he has to see his doctor to make sure he don't lose no more weight. So we still need prayer for him.

Monday, December 6, 2010

Evan had surgery Thursday he did good. I just didn't like what they told me. The inside of his penis was so raw he had skin hang in there. That's why he couldn't pee. So they had to put a Suprapubic Catheter in. So now he has to get use to the bag on his side. Evan is still in some pain where they cute him. Yesterday he couldn't walk or stand. He just cry and cry and you can tell he was in some pain. I told him he needs to go to sleep that he will feel better so i got him to sleep and slept for 4hours. When he got up he was still in pain so i gave him some more pain medicine. That helps some.
Today he is doing better, he is walking and playing. I took him to the doctor to make sure everything was okay. The check his urine to make sure he didn't have no infection. Everything looked good. So i was so glade.
So now everything is going to change i have to watch to make sure he don't pull on the bag. I have to keep the bag on the outside of his paints so it wont tear up his leg. His legs look so good i don't wont to tear them up. His skin looks so good. He still not eating. He just don't care for food now.
We are going back to Cincinnati in Januray to check his airway again and see what they are going to do with the Catheter. So we need prayer for him.

Wednesday, December 1, 2010

We are going back to Cincinnati today. Evan is having surgery again on Thursday, they going to see whats going on with his penis. I hope they fix it this time and he has no more problems. They going to keep him over night to keep an eye on him. So we need prayers for him. Thanks.