Sunday, June 24, 2012

Evan SP Catheter is getting clogged up he had bad night last night. I will be calling the doctor to see if they can work him in to get his new catheter. He has appointment on Friday but i don't think he will make it. His finger is bad swollen and red.  He wants me to hold him but it hurts him so bad when i hold him. He told me he is tired of his boo boos he wants them to go away.
 I just wish I could take all his pain away.

Hear are some picture when we was at the zoo.

 Evans Paw paw got him the power wheel

Thursday, June 21, 2012

Evan eye is still hurting him. Took him to the doctor we have new eye ointment and he is on antibiotic's to. He has another UTI. He is still having fever his skin is looking bad. The heat is bad to, i want fall to come.
Evan has to get better soon, we go next month for his wish. He is going to have so much fun, he will be so happy. I cant wait either,

We had bingo for Evan and for EB. 

Monday, June 18, 2012

Evan's eye is getting worse. I can't wait until he gets his skin grafts. I hope the skin grafts works. All we can do is pray that it will work. His skin grafts is in August.