Monday, May 31, 2010

It has been crazy around hear. Friday morning i had to take Evan to the Urology, he got up and his diaper was dry, so i new there was something wrong. Abut two hours later he started to scream and cry and wouldn't stop, so i new there was something wrong. So we went to the Urology. He said that it was almost closed up. SO we had to get the nurse in there and she had to help he hold him. The had to put the catheter in and he couldn't get it in so he got something else and got. Then put the catheter back in to get some of the pee out and to see if he had any infection. He didn't have no infection. SO that was good.His boy part is still hurting him.

Evan has been itching alot. SO they called some new med. for him so i hope this helps him. His face is still looking bad. He touches it now and the skin tears off. I wish i new what to do for him. i keep him inside where its cool.

We are going to Cincinnati in 3 weeks. We are going to see the dentist when we are up there. His teeth are still hurting him.


  1. Hello,

    I am so so so sorry to hear this. My heart hurts just to think of what he is going through. Sending you guys all my love and prayers. When you guys come back to Cinci, we need to get in touch so we can meet up again. Would love to see Evan again.

  2. I check in on your blog now and then and I'm very sad to hear that evan is having problems again, such as what you describe. My youngest is one and doesn't have EB, but does have urinary problems, so I can understand the whole catheter thing. NOT fun. Lots of prayers for little Evan and you and the rest of your family. God know what you need..exactly. So, that's what I'll pray for. Stay strong..for Evan.