Evan had his surgery he did good. The urology doctor is going to change out Evan's catheter every 3 weeks now. Because he just cant make it to the 4 week. The ENT doctor check his vocal cords and everything is still the same looks okay. His noise got clean up they silver nitrate it and it looks really good. I just wish it would heal. They did a biopsy on his tongue to see what it was. we will no something in couple days. I just hope its nothing.
We went and say the eye doctor to and his right eye lid is missing alot of skin. He is worried about his eye. I have to keep his eye good and moist all the time. IF not he said he could lose his eye sight and we don't wont that. He said that we will have to do some skin grafts if no better soon. so i wont that now why wait. So any way we go back there in 6 months and if no better he will do some skin grafts on his eye lids. It will help for awhile. The only thing that will help it heal all the way is a cure for EB.
We go back to Cincinnati to the EB doctors in March. When we go up there i hope they will do it while we are up there. But i no they wont. But I'm going to see what i can do about that. I cant wait to go back up there and see all the doctors. I just wont to thank everyone for all the prayers for my son.
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