We are home now so glade. Evan is doing so much better now. He don't like the bag on his side. But he has to have it so see if this will keep his penis open. His breathing is good and he looks good he is Evan now. I'm so happy. He got up this morning and eat. I love it. All i can say is GOD IS GOOD.I have to keep him up in his high chair or hold him to day because he wont's to pull the tube out.
Thanks for the prayers.

UVA Surgery Update

Mandy again--posting for Christina. She just called and Evan is out of surgery. They had a hard time waking him up, and his oxygen and heartrate were both low. He's awake now though, had something to drink and is resting in a room. They decided to keep him overnight for observations since he had a hard time waking up. The scope on his penis showed it was clear inside, so the dr's think its mainly the tip that keeps growing closed. They put in a catheter and want him to keep it in a few days, while giving Christina cream to put around it in hopes it keeps the skin from closing up onto the catheter tube. Lot's of prayers are needed for this little guy and his mom too, they definately can use all of them!!

Evan walking
I love it

Evan is having surgery tomorrow. I hope this helps him.

EVAN IS WALKING

Evan is doing good walking I'm so glade. He is having surgery on Wednesday. They are going to open his hole on his penis. So he can pee, better. I hope it works. He needs it he has been having problems for so long. Evan is still not eat like he should. I wish his blood work would come back soon. Maybe it will tell us something. The GI doctor that he see is good. He said he will help him.

We had a good Christmas Evan was in a good mood he was feeling good. My kids got so much stuff this. Thanks for everyone helping me. Evan is getting better, he still has a cough. He isn't eating that good at all.
He did take off walking to day. I about to fall in the floor.

Christmas of 2009