This is Evan. He was just born. When I saw him he had some skin missing on his finger I ask the doctor they said it was ok that it was just where he sucked his finger when he was in my belly. But i new there was something wrong. He had a different cry and everything. The next day he got more blister on him so they sent him to another hospital. That's when they did a biopsy on Evan a couple of days we got his results an he had EB. Did not no what that was. I was so scared.
I just got to see my mommy for the first time.