Hannah feeding the animals.

Hannah at the Zoo

We went to the ENT doctor yesterday. It went good they are checking him for allergies, So i hope we will no something soon. His breathing hasn't been that good, he told me when he get really bad for me to bring him in and he can give him steroids for his breathing. I didn't know that. We are really worried about his noise he said for me to keep on what I'm doing. There is nothing they can do for his noise. I wish they could.
When we got done we went to eat lunch. We was eating and you know everyone was looking at Evan. I'm trying not to let that get to me but it is so hard. So anyway i had a nice lady came up to me. and she said did your son get bit by a dog, i said no i haven't heard of that one before and she just looked at me. Then i told her about Evan condition she said I'm so sorry. She was really nice, so i was nice. Then i had a guy come up to me and he asked me what happen to him, he said did he get burned i said no. Then i told him what Evan had. He was a preacher he asked me if he could pray for Evan and i said yes. He asked me if he could touch Evan's head i said yes but i said he might not like it because he don't like people. Will Evan let the preacher touch him and we prayed and Evan didn't cry at all. That was just amazing.

Hannah test came back and she is okay. It's not her liver or her pancreas. She is constipated so i have to get her clean out. So she is on milk of magnesia. I hope this helps. I just hope we can get her cleaned out and it dont happen again. She was in some pain. So thinks everyone for the prayers.

Evan is reading the bible. Sorry it didn't turn out that good i don't no what happen.

Evan an his sisters was play with his trucks.

That was Evan again reading the bible. That isn't clear either. Sorry i don't no what happen. If i new all the videos was going to be like that i wouldn't have put them on hear. Sorry again

Evan is doing okay. He still has the cough i think its just Allergies. His breathing has been bad he is doing some breathing treatments. They are helping him. His skin is looking better now. Evan is having a hard time peeing again so i have to open him up again. I wish there is some thing we can do about that. I hate doing that to him.

Hannah is going for a CT Scan on Friday. So i hope they can tell me something. She has been eating good this weekend. I really hope it's nothing major, hopefully they can give her med to help her.

Evan is doing good. He has a bad cough right now. He isn't eating good either. But doctors said he is okay. He is having problems again with his penis i had to open him up last night. I hate doing that. He is loving this warm weather he wont's to stay outside all day long. But the heat is putting a lot of blister on him. So what do i do. I let him play for awhile and i bring him in. His grand daddy got him a sand box and he loves it, he played in it for ever yesterday. Then he was throwing the sand on his sister so i had to get him out. He didn't like it at all.

Hannah is doing okay she is getting a CT scan done on the 23 so i hope they fine something. She still have having a lot of pain in her stomach. I hope they can give her something to help her. she isn't eating either and she needs to eat she is little. So thanks everyone for the prayers.

Easter morning



Evan coloring Easter eggs with his sisters



Finding Easter eggs

I hope everyone had a good Easter. We had a good Easter. My kids had so much fun this year it has been so nice hear so we have been outside all weekend hiding Easter eggs. So you no I'm glade Easter is over. I had fun hiding Easter eggs i just glade its over.

I had to take Evan to the doctor Friday he has a cold but its not that bad. So i was so glad. We got some medicine for him and it helped, he still has the cough but no more fever.

Evan not eating good again, i don't no why. I just make sure he is drink a lot. He has a lot of sores on his toes and his face, some on his buttock. I guess its just the heat.
I cant keep him in. He loves playing outside with his sister. He was outside yesterday and he was playing with his cars on the side walk and he his arm gave out on him, and he hit the sidewalk with his face. It was bad. So now he is missing some skin on his face. I felt so bad for him, i hate EB. He try s so hard to do stuff and he gets hurt his skin tears or he blisters.

I need everyone to pray for my daughter Hannah. She see the GI doctor every 6 months. She has some problems, any way her blood work came back and her blood count is down. SO they are going to do a CT scan on her stomach to see what's going on. She don't wont to eat and she is so tired all the time. So just keep her in our prayer. Hannah is 4 years old.