Evan's Journey

I hope everyone had a good Easter. We had a good Easter. My kids had so much fun this year it has been so nice hear so we have been outside all weekend hiding Easter eggs. So you no I'm glade Easter is over. I had fun hiding Easter eggs i just glade its over.

I had to take Evan to the doctor Friday he has a cold but its not that bad. So i was so glad. We got some medicine for him and it helped, he still has the cough but no more fever.

Evan not eating good again, i don't no why. I just make sure he is drink a lot. He has a lot of sores on his toes and his face, some on his buttock. I guess its just the heat.
I cant keep him in. He loves playing outside with his sister. He was outside yesterday and he was playing with his cars on the side walk and he his arm gave out on him, and he hit the sidewalk with his face. It was bad. So now he is missing some skin on his face. I felt so bad for him, i hate EB. He try s so hard to do stuff and he gets hurt his skin tears or he blisters.

I need everyone to pray for my daughter Hannah. She see the GI doctor every 6 months. She has some problems, any way her blood work came back and her blood count is down. SO they are going to do a CT scan on her stomach to see what's going on. She don't wont to eat and she is so tired all the time. So just keep her in our prayer. Hannah is 4 years old.