Evan has had a rough week again. Evan hasn't been feeling good again. I took him to the doctor yesterday to check his iron level is was 7.2. So went to the hospital to day and they gave him a blood transfusion he did so good. I was so happy, he stayed in the bed all day, and he played with his toys. He watch TV, he was the best little boy. Now he looks so much better. I hope this makes him feel better, and some of his wounds heal.
Evan still not eating I'm so worried about it, I'm going to talk to them about the G Tub. I'm afraid he isn't getting what he needs.
He is still having problems with his peeing. He is having a hard time again. I did open him up to day, but i don't think it's going to work. he