Evan is having surgery tomorrow. He is getting his catheter change out, after that he getting iron infusion. Evan is doing okay. He is staying tired alot. His catheter is hurting him really bad. His skin is looking bad. I'm glade its summer but its tearing Evan up. He loves it out side and the heat isn't good for him.
We are haivng a poker run for Evan. The money is going to go to Debra for CURE for EB.
I dont have time to blog right now. Everytime i get on the computer i have to get up and get something for the kids.