Evan had his surgery he did good. He got his new Catheter and some iron. His skin is looking really bad. His bottom is really bad. It hasn't looked this bad in long time. His legs are bad and his arms are getting bad. Evan arms always did good until now. so i don't no whats going on. I think it the pain that he is in. He hurts so bad when he has bowl movement and his catheter keeps on getting clogged up. I wish he could pop with out pain. When he has bowl movement it is bad. He will put his head on the floor and say mommy why, mommy why. That just breaks my heart.
Every time i touch him i hurt him now. I cant pick him up if I do he will scream. It's so sad to see you child in so much pain and cant do nothing about it.
He wont eat now. Every time he eats he gets choked. So they told me as long as he is drinking his PediaSure he will be okay.
My girls are in school and Evan is still in bed so i got on the computer to blog and check my emails. Every time i get on my computer Evan tells me to get off and play. LOL.
We are going on vacation for a week in June i cant wait. Its going to be me and my kids and some of my family. I hope Evan will do okay. This is his first vacation. We go to Cincinnati alot but that's no vacation to him. I need to start packing so i don't forget nothing.
I cant wait untill saturday it the Poker Run for Evan. The money is going to Debra for a cure.