We are home from the beach and I'm so glade. Evan had bad week. We got there Saturday around 3:00 and he didn't feel good. I new there was something wrong. His peeing wasn't right he didn't have that much pee in his bag. that night he got worse. Sunday he was in a lot of pain. He couldn't pee at all. So i kept on flushing his catheter out and praying that it would help. It didn't we had to fine a hospital. I new i didn't wont to go to the hospital because they wouldn't know about Evan's EB. So we went and they was nice, they had to transport us to a children's hospital. So i got scared again, new doctor. We went to Kings Daughters hospital, they where so nice to. They gave him morphine to help him with the pain until they could get him in the OR. The urology doctor came up and talk to us, he said we will get him in now. So they got everything ready, that time Evan was in so much pain, i felt so bad useful. I couldn't help my baby and he had to pee. They got him in the OR. Then he went into the recovery he was out. He wouldn't wake up at all. We went back to the hotel and Evan slept all day. The next day he was a different child, I was so glade.
Wednesday I took Evan out on the beach. He was out there hour or two. I took him in gave him a bath. He told me he didn't feel good. He got up on the couch and went to sleep. When he got up he told me he didn't feel good again. He felt hot. So i try to get him to eat he didn't wont nothing. So that night he got sick. The next morning he was fine. So i don't no what was wrong with him.
The week way from home was bad. Evan was so home sick. I will never go on vacation again. Evan loves to be at home so that's where we will be for now on.
My girls had so much fun they love the beach. They was ready to come home to.
We got home to day and Evan was so happy. He played with his trucks and he played. He is feeling better. He still has low grade fever. So i will have to watch that.