Happy 4 Birthday Evan

 

 

 

Evan had good birthday. We had his party at the train station. The weather was nice it wasn't hot. There was storm on the way. So we tired to get everything done before the storm came. So we was getting ready to eat the cake and the storm came. The wind picked up and it rain so hard. So all the kids went inside the building, and we clean up everything and put the stuff in the car. Evan had lot of people there and he got alot of nice stuff. I want to say thanks for everyone that came.

 

 

 

 

 



 

 



 

Evans eye is still healing. Its looking good.

 

 



 

Evan has to go to UVA tomorrow to get his new catheter. He has been doing okay. I had to take him to the doctor on Friday he had sore that didn't look good. So Dr. B. did a culture on it. We should get the result tomorrow. I hope its nothing. He had a fever over the weekend. Today he seem okay no fever. He is breathing little hard. I been giving him breathing treatments. I hate when he breaths like this. If it keeps it up i will be taking him to Cincinnati to see the ENT doctor. His airway is already small don't want it to close up.

Evan starts school tomorrow he will miss his first day. But on Wednesday he will be there. I cant believe its time for school already. He will go 5 days week for 3 hours day. I hope he will like it. It will be good for him to being around kids his age.

 

I just want everyone to please pray that his graft will work on his eye. We go back in couple more weeks to see the eye doctor.

 

 



 



 4 Days after Surgery

 

 Day 5

 Day 5

 



Evan is doing good. He has his left eye open now. The eye with the graft still swollen. But he is so glade to be home. Yesterday he played in his room all day. He told me that he was so glade to be home.

Now we are just watching his eye and see if the graft will work.

 



 

 Chy started 6 grade.

 

Hannah started 1 grade.

Evan had his surgery. He did good. His eye is sore. He don't like it wrapped up but he has to. We have to see the eye doctor on Tuesday to see if the graft will work.
Evan had to stay the night at the hospital so he could get some IV antibiotics and get his iron infusion.
I want to say thanks for all the prayers.

This is Evans new Ds. He is playing with it while i do his bandages. He loves his DS

This is the week we go to Cincinnati. I'm glad put also scared. We have two days to see all kinds of doctors. Then on Friday he having surgery. He is getting his skin grafts on his eyes lids. I hope it helps his eye.

He still not eating. He isn't drinking much of his pediSure. Every time he drinks he says his stomach hurts. So I'm not sure what that is all about. I guess we will have to ask the doctors while we are up their. Some of his sores will not heal. So I'm hopping they can help with that.
Evan is also telling me that his legs hurts still and i don't no whats up with that.

I just want everyone to please PRAY for him this week that we get good news, and his surgery turns out good. Thanks.

Evan has been doing okay. His skin is still looking bad. He had to get another iron infusion, his iron level is still low.
We are getting ready to go to Cincinnati this month. He has to see all the doctors then he is having skin grafts on his eye lids. I want everyone to please pray that it will work like it is suppose to.

My baby's.