We had a good trip. We meet some awesome people. It was so good to talk to people there that know what you feel.
We took Evan to the dentist there and they didn't do nothing to his teeth we go back in 3 months and then they will cap them. I wish they would have done it now. They said that his teeth need to come in some more. What do i know. I think they should have caped them.
We went and saw the ENT doctor. He scooped Evan and his vocal cords are even thicker and swelling. and he had a blister in there. We go back to Cincinnati July 1. and they are going to put Evan to sleep and look in his airway. If he thinks Evan needs a trach he will put one in then.
Evan cant go outside and play now. The doctor said the heat is making his breathing worse. SO now we have to keep him inside that is going to be the hard thing to do. It's so sad he looks outside and he just cry to go out. What do you do.
Evan is still having a hard time peeing. I had to take him back to Dr. this morning so they could open him up. He still cant pee. This is two nights now that he has been up because he cant pee. Mommy is getting really tired. But i will be okay.
He still not eating. He might eat one little meal a day if that. I'm so worried because he isn't eating. The doctors said that he will be okay. I don't wont him to lose no weight.
I'm going to try to lay down. I'm so tired
I am glad to hear you had a good trip, I wanted to see you guys so bad but my work schedule changed and could not make it.
ReplyDeleteThis makes me so sad.I want my little Evan to feel better soon. Did you ask them about his boy part? Hopefully they can help him out with his boy part and breathing quick. I can only imagine what you are going through. Sending you guys my love and prayers. Maybe this next time you come down here I can go and see you guys.