Evan's Journey

We had a party for Chyanne today. Her birthday is July 4. She will be 9 years old my a baby girl is getting so big so fast. where did the time go.
I wouldn't to have it today because we are going back to Cincinnati Tuesday. We don't no when we will be back home.
Evan is going to be put to sleep and get scooped to see what's going on in his airway. I know everything will be okay. They said if he gets trach will be there for awhile so i can learn how to take care of. I don't no if i wont him to have a trach, but if it's going to help him breath i guess i will. He is also going to get his little boy parts looked at. He is still having a hard time peeing, his hole keeps on closing. So they are going to see what they can do. HE is also going to get his blood check to makes sure his iron is okay. So we are going to have busy week and Evan isn't going to be happy at all.