Saturday, September 11, 2010

I can't believe Evan is 2. He has had a rough two years. But he is strong and he is a fighter. We are going to fine a cure for this illness. We are having him a party today at pizza hut. He loves pizza. So we are going to have some Friends and family there.
He is doing pretty good right now. His teeth are still hurting him. We are going to Richmond Wednesday to meet a dentist. Cincinnati wouldn't take his insurance so they helped me fine a dentist in VA. So when we go Wednesday I hope they can fix his teeth soon.
He is eating good right now. So i hope he keeps on eating like he is.
He still has sores that just wont heal. His hips are so bad and his diaper are is so bad. His toes are still not healing.
It is getting cooler outside now. So we can go out and play. But we still cant stay out long because of the bugs are so bad. So we just cant win for nothing. We went to the park the other day and he had so much fun. But all the little kids was just looking at him. They wouldn't stop looking. How do you tell little kids about Evan. They don't understand. But we just kept on playing. Evan was trying to play with some of them but they wouldn't play with him. That was so sad. I hate to see when he gets older what people will say or do. But i know people just don't no about this terrible illness. Evan's face is the worsted on him and i wish it wasn't. But it will be okay.


  1. HAPPY BIRTHDAY EVAN!!!! You have such a wonderful mommy, I hope you had a blast on your b day. You have so many people that love you and pray for you every single day. Like I have said before you have changed my life in some many ways. Thank you Evan. Never let nobody make you feel bad because you are an angel from God and you are so special. As parents we have to start teaching our kids as young as possible that there is no difference in skin. Kids don't know any better, I ask how do kids know? It hurts me so much to hear this. My little Evan nor any child deserve to be isolated. LOVE YOU EVAN!

  2. Hi! I'm Jill, the person from the hospital waiting area. It was nice meeting you and Evan, and sorry I did introduce myself to grandpa.

    I hope the rest of your visit went well. Good luck with the surgery.