Evan has had corneal abrasion now for 8 days. He has been in so much pain with it. I hate them. This is the worse part of his EB. I had to take him back to the eye doctor again today, they said if no better by tomorrow they might put a contact lens in. I don't no if i wont to do that.
Evan goes back to the OR next Friday to get new catheter in. Then we start going every two weeks and he will get new catheter, he will be awake. I hope he can do it awake and its not to bad on him
Evan didn't get to go to school this week because of his eye. This week has been so stressful. Evan wont's me and only me i couldn't do nothing. Then when the girls got home from school they got mad because i couldn't do much for them. I try to tell them that Evan is scared and in alot of pain when his eyes are like this. So they understand but they wont there mommy to. I just feel so bad sometimes i just don't no what to do. Sometimes i wish i had some help, but i guess it wouldn't do no good. Because he wont's his mommy and so does the girls.
Saturday we are going to the monster trucks. Evan loves the monster trucks. I just hope his eye is better. The kids are so happy to go, and i hope we have so much fun. I can't wait to spend the day with my baby's. Evan's grandparents are going to so we will have so much.