I had to take Evan to UVA yesterday to see ENT doctor. Evan's noise is getting bad it's not healing and his noise is closing up. He has something on his tongue that is growing. So when Evan goes to the OR in December for his tube change, the ENT doctor is going to look at his tongue and silver nitrate his noise again. They wont to look at his air way but i don't think I'm going to let them. They aren't going all the way down just to his vocal cords, but its still to dangerous. I just wont to no what's on his tongue is. Maybe that's why he don't wont to eat. Evan doesn't eat nothing at all, he does drink. So everyone please keep Evan in your prayers.

Evan school picture. She did a good job on it she touched it up for me. You cant see his boo boos on hear. He looks so big, my little man is growing up on me. Evan mommy loves you so much.

My three baby's. We had a good Halloween.
The girls went trick or treat they had a good time. Evan didn't wont to go, he stayed with his granny and his paw paw. He help hand out candy.

Evan had surgery on Tuesday he had to get new catheter. He did good.

We got some snow this weekend. So the kids played out in the little bit of snow we had.

Evan is having hard time with his catheter right now. He is having surgery on Tuesday to get new catheter. I hope it stay open until then. Last night at bath time he screamed he didn't wont to take bath. He said mommy no please mommy no don't flush my tube, don't wash me, it hurts me so bad. That just breaks my heart. My little man has to deal with this everyday.

Chy Evan Hannah

Me and the kids carved pumpkins last night. Evan didn't like the stuff inside of it. So me and the girls cleaned and carved the pumpkins. When we was done Evan love the pumpkins.

Evan has been doing okay. He is having surgery on Tuesday he is getting new catheter again. I hope it makes it until Tuesday. He is having hard time with it right now its getting clogged up and he has UTI.

EB awareness is this week and we need a cure for EB.

This is why we need a cure. I have to watch my son cry to pee, or i have to watch him scream when he has bowl movement. I just hate it. Or when i take his diaper off it is stuck and i tear is skin. Or when i take his bandages off they are stuck and i tear his skin again. Or when i put him in the bath all he does is scream. There is so much that he deals with he stay in pain all day long. Its not far. I pray everyday for a cure for EB.

EB AWARENESS is this week.

We need a cure for EB.

These kids dont need to be in pain all the time.

Go to DEBRA.ORG

to learn more about EB.

Evans foot.

Evan eyes they wont close no more.

Evan blister on his foot.

We are waiting to hear back from Make A Wish Foundation. They came and interview us last week. Evan wish is to meet Denis Anderson he drive Grave Digger and he wont to ride in Grave Digger truck. Then he wont the power wheel Grave Digger. I just cant believe we got interview with them. He love Monster Trucks. That's all he plays with, he plays with is trains to.

Evan has been sick on and off for the last month now. I think I'm going to take him out of school i hate to do that because he likes school. He don't like me leaving but after i walk out of the room he is fine. They say he does so good. He talks to them and he does what everyone else does. School makes him so tired, when he gets home he lays around the rest of the day. I don't no what he will do when he starts school all day long.


Tomorrow he goes to the pumpkin patch with his school. We are going to have so much fun. He will love it. But he will be so tired when we get home.